Sometimes it's really hard to explain what EDS "looks" like on a day to day basis. Especially when we are parents trying to explain to family members or friends who have never heard of EDS. This video and other videos can be helpful to share with loved ones for a deeper understanding.

These are a few websites that have encouraged us in this first week:

To learn more about EDS, visit the EDS National Foundation website.

If you have or have a loved one with EDS, you may find support and comfort here.

it begins...

Jackson's diagnosis came on April 1, 2013. It was not an April Fools Day joke. We are in the diagnostic stage and are postitive that we will get Jackson the help he needs to manage his pain. Knowledge is power and we are learning more and more everyday!